Jonathan Lusk

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I'm part of A Ray of Sunshine and we're moving for CP research

JOIN US as we MOVE4CP  - My Team's Story

SHORT VERSION:  3 1/2 year old Raymond was diagnosed with CP almost 2 years ago. He's nonverbal, and he's just learning how to walk with the assistance of a walker. He was making great progress, but COVID halted all of his necessary therapies. We might be in lockdown or quarantine or self-isolation, but CP persists. It demands to be felt and dealt with, whether we have the time, health, space, energy, or tools to do so. It shows us on a deeply personal level how important it is to continue to raise funds, and why our research retains urgency right now, even when everything feels urgent.


LONG VERSION:  Cerebral palsy statistics are quite shocking.

* CP is the most common childhood-onset disability in the world

* A baby is born every hour with CP

* 1 in 3 people with CP cannot walk

* 1 in 4 people with CP cannot speak

* 3 in 4 people with CP experience chronic pain

* estimated related lifetime costs exceed $1.2 million per person

The lack of funding for CP research is mind blowing. We can make a difference. 

We specifically focus on our contribution to early detection because it is so relevant to our story. Raymond wasn't diagnosed until 24 months. There were so many months of uncertainty, fear, confusion, and unfortunately 21 months without crucial therapies.

Just $25 can assist with funds for training medical teams to detect cerebral palsy in babies as young as three months old, so they can get timely physical therapy. No family should have to wait months for a diagnosis when they sense something is wrong.

So set a goal and JOIN US, or donate a buck, or two, or whatever you can to support the cause. Every little bit helps. 

Let's keep CP research moving forward. Let's make a difference together!

Thank you for your support,

A Ray of Sunshine

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My Updates

Thanks to everyone who donated 5/14/20

Friday 15th May
I just wanted to say a big thanks to everyone who donated to this fundraiser during yesterday's Trivia stream! I can't believe we raised so much last night! <3

Thank you to my Sponsors

$52

Michael Slater

$36.40

Egor Palchyk

$26

325 Beach Rats

$26

Joann Laport

$26

Anonymous

Good luck!!

$26

Jan M Allison

All the best

$25

Jonathan Lusk

$10.40

Mary A Black